11/15/18 Ruxolitinib Moves On Without Me

I started the BATCC clinical trial on ruxolitinib on June 17, 2016. It was a two year trial designed test the effectiveness of ruxolitinib on alleviating the symptoms of CLL (fatigue, bone pain, joint pain, and others) by targeting cells that carried the JAK-7 enzyme, which produces inflammation. Inflammation is the source of many diseases…

10/8/18 Ten Years with Leukemia

Today is my the tenth anniversary of my CLL diagnosis. In ten years a lot has happened. I learned an awful lot about a disease about which I had previously known nothing. I researched, found, and still have world class care and treatment. I watched and waited. I then watched my lymphocyte doubling time soar…

6/22/18 Deborah Robins – Home Fires

I am not a reviewer, nor a critic. I don’t like to criticize other’s work. It is often said about critics that they become critics because they cannot do. That leaves me right out of the critical realm, because I can and do. What I truly enjoy is the doings of others, especially when I…

6/22/18 Stillhouse Junkies – Over the Pass

I’ve known Stillhouse Junkie bassist Cody Tinnin for a long time, he and his whole extended family. Cody’s father, Glenn, and Uncle Bruce were high school friends and are still friends. My first official musical public performance experiences were as a duo with Bruce Tinnin, and later in bands together where we learned a lot…

6/22/18 Scott McQuaig – A Song Away from You

I am a fan of Scott McQuaig. His singing and songwriting are impeccable. He recently released a new CD called A SONG AWAY ROM YOU. He was kind enough to send me a copy in April since the USMail apparently mishandled my invitation to his CD release party. I just listened to it today. I…

1/15/18 The Downside of Social Media

Let’s admit it. We all like it here. We like the Facebook world, where all our lives seem larger than they really are. We like the Twitterverse where we see how many followers we can amass. We like our Instagram followers. We like the endorphin release we get when we get lots of “likes” on…