12/1/18 No Words

Sometimes there are simply no words. No words of comfort. No words of wisdom. No words of understanding. Sometimes there are only questions for which there are no answers. This is one of those times. Watching heretofore unimaginable grief and pain in those I love so dearly is a lesson in futility for me. Everything…

11/15/18 Ruxolitinib Moves On Without Me

I started the BATCC clinical trial on ruxolitinib on June 17, 2016. It was a two year trial designed test the effectiveness of ruxolitinib on alleviating the symptoms of CLL (fatigue, bone pain, joint pain, and others) by targeting cells that carried the JAK-7 enzyme, which produces inflammation. Inflammation is the source of many diseases…

10/27/18 Dental Wizardry

We always talk about modern medicine and its many miracles. Well, we’ve always had modern medicine. What we have not had was modern dentistry. Modern dentistry is a relatively new invention, and a good one. What dentists can do is remarkable. Thank goodness. I had a knot come up on the lower right side of…

10/8/18 Ten Years with Leukemia

Today is my the tenth anniversary of my CLL diagnosis. In ten years a lot has happened. I learned an awful lot about a disease about which I had previously known nothing. I researched, found, and still have world class care and treatment. I watched and waited. I then watched my lymphocyte doubling time soar…