4/15/18 Two More Years

I have been on the Ruxolitinib trial for two years now. It has been good so far. The trial was designed to address the symptoms of CLL and prove, disprove, or measure its efficacy in individual patients. The requirements of the trial were that each person enrolled must not be treatment naive, meaning that they…

2/12/18 Houston as the Gathering Place

It was just a simple Facebook post about being in Houston for my two month checkup. It was followed by a message from Tennessee’s husband, Sam. “We are here and would like to meet up if we can,” Sam wrote. That stopped me in my tracks. Tennessee and Sam and I have been Facebook friends…

10/5/17 Troubles….Everywhere…Well, Nearly Everywhere

My trip to Houston for a checkup was enlightening. I saw much that the otherwise unobserving eye might have missed. I don’t miss much, though; after all, my name is Sharp. I had been to see Hemosapien on 9/27/17. I had not seen him in a while since I have been on this clinical trial…

7/25/17 A Good Trip

Any trip to BATCC where you get good news is a good trip. My good news is that, in spite of my apprehensions, I am pretty stable and doing well after 15 months on the Ruxolitinib. My White Blood Cell count is high, of course, but less than the last trip as last time I…

7/24/17 Restless Apprehension

Sleepless in Houston is much less romantic than Sleepless in Seattle. But my having to type this on my phone will relieve you of some restlessness due to its brevity, and likely amuse you with egregious typographic errors. They always pop up when I try this. Editing one’s own writing is hard enough as it…

7/23/17 One Year in on the Ruxolitinib Trial

I am in Houston for a checkup. A couple of changes in my RLS medicine has me sleeping much better. The Ruxolitinib seems to be doing its job well. All in all, I am pleased. At least I am pleased tonight…I may be less so after my checkup tomorrow, but I expect good things. I…

6/3/17 Houston Tomorrow

Pneumonia. Then relapse of Pneumonia. Then no sleep since my restless legs medicine decided not to work at all. One simply can’t sleep when one’s legs are running marathons. Then nasty side effects from Levaquin (levofloxacin). Look them up and see for yourself what they are. Mine primarily showed up as an all over painful…