1/24/20 CLL Causes Confirmed

Yes. You heard it here, maybe not first, but you now have the facts. Of course, I have no facts to support my headline, but P.T. Barnum-esque headlines get more attention. I am a member of a wonderful Facebook group for those of us with CLL and their caregivers. Most of the members see CLL…

12/3/19 Return of Posts

I only posted a few times in the past year. I just had too many things occupying my attention. Few of them were good. I am not here, now, to rehash the struggles life dealt us in the past year. We all have struggles. We all have had bad times. When I think of this,…

10/13/19 So Many Changes

The past ten months have seen more changes in my life than any other period. I daresay few of the changes have been good. It has not been a pleasant time. In November 2018 my daughter’s husband, for some unfathomable reason, took his own life. My beloved stepfather passed away from pancreatic cancer in December,…

6/22/19 I Don’t Know

“I don’t know,” said Hemocastle as to the diagnosis of Myelo’s pain and other symptoms. After several CT scans and Ultrasounds, Surgeon Two Lips declared, “There are several things that I know that are not wrong with him, but I don’t know what is,” adding, “But I see nothing that requires surgery.” This was a…

1/31/19 Obscure Marx Brothers and Blood Cancers

This is a long read. I do not apologize.  Did you know there were five Marx brothers? Everyone knows Groucho, Harpo, and Chico. There were two more: Gummo and Zeppo. They weren’t nearly as well known. Rumor has it that there may be two more, younger, perhaps illegitimate brothers, heretofore unheard of. When it comes…

11/15/18 Ruxolitinib Moves On Without Me

I started the BATCC clinical trial on ruxolitinib on June 17, 2016. It was a two year trial designed test the effectiveness of ruxolitinib on alleviating the symptoms of CLL (fatigue, bone pain, joint pain, and others) by targeting cells that carried the JAK-7 enzyme, which produces inflammation. Inflammation is the source of many diseases…

10/27/18 Dental Wizardry

We always talk about modern medicine and its many miracles. Well, we’ve always had modern medicine. What we have not had was modern dentistry. Modern dentistry is a relatively new invention, and a good one. What dentists can do is remarkable. Thank goodness. I had a knot come up on the lower right side of…

10/8/18 Ten Years with Leukemia

Today is my the tenth anniversary of my CLL diagnosis. In ten years a lot has happened. I learned an awful lot about a disease about which I had previously known nothing. I researched, found, and still have world class care and treatment. I watched and waited. I then watched my lymphocyte doubling time soar…