11/15/18 Ruxolitinib Moves On Without Me

I started the BATCC clinical trial on ruxolitinib on June 17, 2016. It was a two year trial designed test the effectiveness of ruxolitinib on alleviating the symptoms of CLL (fatigue, bone pain, joint pain, and others) by targeting cells that carried the JAK-7 enzyme, which produces inflammation. Inflammation is the source of many diseases…

10/27/18 Dental Wizardry

We always talk about modern medicine and its many miracles. Well, we’ve always had modern medicine. What we have not had was modern dentistry. Modern dentistry is a relatively new invention, and a good one. What dentists can do is remarkable. Thank goodness. I had a knot come up on the lower right side of…

10/8/18 Ten Years with Leukemia

Today is my the tenth anniversary of my CLL diagnosis. In ten years a lot has happened. I learned an awful lot about a disease about which I had previously known nothing. I researched, found, and still have world class care and treatment. I watched and waited. I then watched my lymphocyte doubling time soar…

5/12/18 Summer’s Here

No. It’s not really summer, yet, but today sure seemed like it. Summers seem harsher here than they used to be. Maybe my tolerance is faltering. Lots of things at my age are faltering. I am glad to be still be here. We have been working long hours in Olive Branch, Mississippi, in the throes…

4/15/18 Two More Years

I have been on the Ruxolitinib trial for two years now. It has been good so far. The trial was designed to address the symptoms of CLL and prove, disprove, or measure its efficacy in individual patients. The requirements of the trial were that each person enrolled must not be treatment naive, meaning that they…