11/15/18 Ruxolitinib Moves On Without Me

I started the BATCC clinical trial on ruxolitinib on June 17, 2016. It was a two year trial designed test the effectiveness of ruxolitinib on alleviating the symptoms of CLL (fatigue, bone pain, joint pain, and others) by targeting cells that carried the JAK-7 enzyme, which produces inflammation. Inflammation is the source of many diseases…

5/12/18 Summer’s Here

No. It’s not really summer, yet, but today sure seemed like it. Summers seem harsher here than they used to be. Maybe my tolerance is faltering. Lots of things at my age are faltering. I am glad to be still be here. We have been working long hours in Olive Branch, Mississippi, in the throes…

4/15/18 Two More Years

I have been on the Ruxolitinib trial for two years now. It has been good so far. The trial was designed to address the symptoms of CLL and prove, disprove, or measure its efficacy in individual patients. The requirements of the trial were that each person enrolled must not be treatment naive, meaning that they…

10/5/17 Troubles….Everywhere…Well, Nearly Everywhere

My trip to Houston for a checkup was enlightening. I saw much that the otherwise unobserving eye might have missed. I don’t miss much, though; after all, my name is Sharp. I had been to see Hemosapien on 9/27/17. I had not seen him in a while since I have been on this clinical trial…

5/3/17 The Pneumonia Menace

After having had a good time at The Alabama Folk School, I returned home, more tired than I perhaps should have been. While I did not keep raucous hours at Camp McDowell, since I don’t keep raucous hours, I did not get much sleep. Sleep for me, is sometimes as elusive as Bigfoot. Have you…

8/28/16 Mourning and August Malaise

Several of you have e-mailed me since my hiatus from FaceBook, wondering if I am OK since I have not posted to my blog in a while. I am making it, me and this ruxolitinib, making it in spite of the August torpor, miasma, and malaise that strikes Mississippi every year. August is the most…

11/1/15 Major Milestone Behind Me Now

A full seven years ago now that October has passed, I was sitting in Hemosapien‘s office, apprehensive, fearful, and more than a bit disbelieving that it was actually me as a patient waiting for a consultation with an oncologist. The universe was apparently mistaken, as this could not possibly be right. Cancer was something that…