11/15/18 Ruxolitinib Moves On Without Me

I started the BATCC clinical trial on ruxolitinib on June 17, 2016. It was a two year trial designed test the effectiveness of ruxolitinib on alleviating the symptoms of CLL (fatigue, bone pain, joint pain, and others) by targeting cells that carried the JAK-7 enzyme, which produces inflammation. Inflammation is the source of many diseases…

5/12/18 Summer’s Here

No. It’s not really summer, yet, but today sure seemed like it. Summers seem harsher here than they used to be. Maybe my tolerance is faltering. Lots of things at my age are faltering. I am glad to be still be here. We have been working long hours in Olive Branch, Mississippi, in the throes…

4/15/18 Two More Years

I have been on the Ruxolitinib trial for two years now. It has been good so far. The trial was designed to address the symptoms of CLL and prove, disprove, or measure its efficacy in individual patients. The requirements of the trial were that each person enrolled must not be treatment naive, meaning that they…

10/5/17 Troubles….Everywhere…Well, Nearly Everywhere

My trip to Houston for a checkup was enlightening. I saw much that the otherwise unobserving eye might have missed. I don’t miss much, though; after all, my name is Sharp. I had been to see Hemosapien on 9/27/17. I had not seen him in a while since I have been on this clinical trial…

5/3/17 The Pneumonia Menace

After having had a good time at The Alabama Folk School, I returned home, more tired than I perhaps should have been. While I did not keep raucous hours at Camp McDowell, since I don’t keep raucous hours, I did not get much sleep. Sleep for me, is sometimes as elusive as Bigfoot. Have you…

8/28/16 Mourning and August Malaise

Several of you have e-mailed me since my hiatus from FaceBook, wondering if I am OK since I have not posted to my blog in a while. I am making it, me and this ruxolitinib, making it in spite of the August torpor, miasma, and malaise that strikes Mississippi every year. August is the most…

11/1/15 Major Milestone Behind Me Now

A full seven years ago now that October has passed, I was sitting in Hemosapien‘s office, apprehensive, fearful, and more than a bit disbelieving that it was actually me as a patient waiting for a consultation with an oncologist. The universe was apparently mistaken, as this could not possibly be right. Cancer was something that…

11/21/14 I Know That This Is the CLL Blog

I have CLL. I write about CLL. But I have been given an opportunity to write about other things because my CLL is not on high on the front burner. I am no longer in MRD status, and back on watch and wait, all while seeing the encroaching signs of accelerating status. I will return…

1/1/14 Remarkable New Year’s Eve

It wasn’t much, really. Just a few fireworks and champagne glasses with champagne for the grownups and cola for the girls and a clock set forward two hours so that it read midnight for the doubly-excited Livi and Maggie. I’m not sure if Maggie even understands the concept of the new year, but she understood…

12/28/13 CT Scan Efficiency

I have written before on the inefficiency of the check-in process at my local hospital for a CT scan or even a simple x-ray. Hemosapien had scheduled one for me for yesterday to have a look at these swollen lymph nodes. Since my blood numbers all looked good, and they didn’t seem nearly as swollen…