7/13/16 Ruxolitinib, Day 27

I have been taking the ruxolitinib (Jakafi®) since June 17, which is nearly a month. I have been back to Houston to see Dr. Gooday, once, on July 6, and will return on July 18. This is a powerful drug and a Phase II clinical trial so I have to be monitored closely. Everything was…

6/17/16 It Starts Today, for Me

It’s not often FedEx brings you a $100,000 package. There were four bottles like the one shown, which adds up to $25,000 per bottle. I admit that FedEx brings me lots of of stuff, some of it expensive, but nothing quite so expensive as this. Of course, the Ruxolitinib is being furnished to me free-of-charge…

5/19/15 The List Needs Some Help

In an earlier blog post, I discussed the list. Lots of folks want to know about the list, some of which I share, but most of which I keep to myself. “How are you doing?” an acquaintance recently asked. “Just fine,” I said on automatic pilot. “And you?” They beleaguered me with their entire list,…