10/13/19 So Many Changes

The past ten months have seen more changes in my life than any other period. I daresay few of the changes have been good. It has not been a pleasant time. In November 2018 my daughter’s husband, for some unfathomable reason, took his own life. My beloved stepfather passed away from pancreatic cancer in December,…

6/22/19 I Don’t Know

“I don’t know,” said Hemocastle as to the diagnosis of Myelo’s pain and other symptoms. After several CT scans and Ultrasounds, Surgeon Two Lips declared, “There are several things that I know that are not wrong with him, but I don’t know what is,” adding, “But I see nothing that requires surgery.” This was a…

10/8/18 Ten Years with Leukemia

Today is my the tenth anniversary of my CLL diagnosis. In ten years a lot has happened. I learned an awful lot about a disease about which I had previously known nothing. I researched, found, and still have world class care and treatment. I watched and waited. I then watched my lymphocyte doubling time soar…

5/12/18 Summer’s Here

No. It’s not really summer, yet, but today sure seemed like it. Summers seem harsher here than they used to be. Maybe my tolerance is faltering. Lots of things at my age are faltering. I am glad to be still be here. We have been working long hours in Olive Branch, Mississippi, in the throes…

4/15/18 Two More Years

I have been on the Ruxolitinib trial for two years now. It has been good so far. The trial was designed to address the symptoms of CLL and prove, disprove, or measure its efficacy in individual patients. The requirements of the trial were that each person enrolled must not be treatment naive, meaning that they…

2/12/18 Houston as the Gathering Place

It was just a simple Facebook post about being in Houston for my two month checkup. It was followed by a message from Tennessee’s husband, Sam. “We are here and would like to meet up if we can,” Sam wrote. That stopped me in my tracks. Tennessee and Sam and I have been Facebook friends…