10/8/18 Ten Years with Leukemia

Today is my the tenth anniversary of my CLL diagnosis. In ten years a lot has happened. I learned an awful lot about a disease about which I had previously known nothing. I researched, found, and still have world class care and treatment. I watched and waited. I then watched my lymphocyte doubling time soar…

4/15/18 Two More Years

I have been on the Ruxolitinib trial for two years now. It has been good so far. The trial was designed to address the symptoms of CLL and prove, disprove, or measure its efficacy in individual patients. The requirements of the trial were that each person enrolled must not be treatment naive, meaning that they…

2/12/18 Houston as the Gathering Place

It was just a simple Facebook post about being in Houston for my two month checkup. It was followed by a message from Tennessee’s husband, Sam. “We are here and would like to meet up if we can,” Sam wrote. That stopped me in my tracks. Tennessee and Sam and I have been Facebook friends…

5/9/15 Hurry up and do . . .Nothing??

CLL patients are all familiar with Watch and Wait. It is a maddening distraction for someone who wants to do something. It is not aggressive, nor even proactive, but reactive. This is despairing to anyone who wants to be assertive, take control, nip it in the bud, get it all behind them, move forward, take…

1/7/14 Just Like Me

Do not mistake the voice of a single London alehouse as the voice of the kingdom. Jonathan Swift Who? Me? Would I do that? Certainly the alehouse I do all my business in, the one that has all my friends, the one I choose because those in it are the most like me, those with…