2/5/21 A better View From Here

Sometimes the storm brings the unexpected. Sometimes it just brings rain. Other times the clouds gather and the wind blows, yet the storm never comes, just a gentle breeze and the soothing sound of raindrops on a tin roof. Last night was like that. Few things soothe like raindrops on a metal roof. The drone…

11/15/18 Ruxolitinib Moves On Without Me

I started the BATCC clinical trial on ruxolitinib on June 17, 2016. It was a two year trial designed test the effectiveness of ruxolitinib on alleviating the symptoms of CLL (fatigue, bone pain, joint pain, and others) by targeting cells that carried the JAK-7 enzyme, which produces inflammation. Inflammation is the source of many diseases…

2/12/18 Houston as the Gathering Place

It was just a simple Facebook post about being in Houston for my two month checkup. It was followed by a message from Tennessee’s husband, Sam. “We are here and would like to meet up if we can,” Sam wrote. That stopped me in my tracks. Tennessee and Sam and I have been Facebook friends…

12/26/16 Nothing Profound

That’s what I wanted: to write something profound. Profundity as a goal is elusive, though it can overtake us unawares from time to time, which is probably the best sort of profundity: the unplanned. We all have it from time to time, and we mostly lack it when we are setting out to be profound.…