10/8/18 Ten Years with Leukemia

Today is my the tenth anniversary of my CLL diagnosis. In ten years a lot has happened. I learned an awful lot about a disease about which I had previously known nothing. I researched, found, and still have world class care and treatment. I watched and waited. I then watched my lymphocyte doubling time soar…

4/15/18 Two More Years

I have been on the Ruxolitinib trial for two years now. It has been good so far. The trial was designed to address the symptoms of CLL and prove, disprove, or measure its efficacy in individual patients. The requirements of the trial were that each person enrolled must not be treatment naive, meaning that they…

10/13/16 Organizing Thoughts

I seldom try to organize my thoughts when I start writing. Perhaps you’ve noticed. No doubt, you’ve noticed. I just start and let ‘er fly from there. “We probably need to start you back on regular treatment (formerly chemotherapy and immunotherapy, now just immunotherapy),” said Dr. Gooday at the Big-as-Texas Cancer Center (BATCC) on Monday.…